Children with disabilities – care, attention and care around the clock

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Families with children with special needs should be brought in front of the curtain much more often. Because their daily lives are anything but ordinary. And that without a break.

The tragic case of Leon, who drowned in Tyrol after his father was knocked unconscious during a robbery, brought media attention to special needs families. The six-year-old suffered from a rare genetic defect (syngap syndrome). Those affected are significantly delayed in their motor and mental development. The boy also struggled with insomnia. He woke up every two hours. So the nocturnal walk at 4 am was nothing out of the ordinary, as it calmed the child.

The baby’s death in Vienna-Donaustadt is still unclear. It had fallen from the balcony while the mother was in the kitchen. The toddler and his big brother, who has a neurological disorder, were alone in the living room. All the more tragic: the police suspect the 11-year-old is involved.

Changes the dynamics in the family
And even if these are tragic individual cases, it shows that the daily life of a family with children with disabilities is like a pendulum swing: from the time-consuming doctor’s appointments and therapies to financial worries, countless challenges pose those involved up to the Exhaustion. After all, caring for a child with serious health problems, cognitive or developmental disorders, disabilities, behavioral problems or autistic disorders also means more strength and energy for the parents. And that day in, day out. Without a break. It seems like a daunting task to meet the individual needs of each family member. All the better that posterity gives you so much back. Unconditional love and lots of joy.

Siblings are in the shadows
Sisters and brothers of children with special needs take social responsibility from an early age. It is not uncommon for them to be part of the home care team and develop unique skills and perspectives that make them appear more mature than they are. But it can also be a stress test for the partnership. Physical and emotional stress, worries about the future of the offspring and hardly any togetherness can gradually empty the love tanks.

Source: Krone

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