In the US, identical twins are waiting to be cured. But the health insurer does not want to pay for it. The family is now hoping for generous donors.
Eli and Easton were diagnosed with spinal muscular atrophy. This hereditary condition can destroy nerve cells in the brain and spinal cord. There is no cure, only treatment to stop symptoms and prevent complications. The two children currently have no symptoms, but it is only a matter of time.
Parents in shock
The health insurer does not want to pay. When the message arrived, the young mother was in shock: “A one-time treatment with Zolgesnesma costs between one million and $2.3 million per child.” That’s why Reed and her husband Austin set up a fundraising website on GoFundMe. They want to get medicine for their babies thanks to the kindness of strangers.
Austin Reed: “The insurance company also rejected our appeal. Now the lives of our children are no longer in our hands, but in the hands of other people. These are difficult things.”
Source: Krone

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