The boy died in his parents’ arms after suffering from a rare epilepsy syndrome

Date:

Sam Liu

Tomorrow (Sunday) a five-year-old boy who died in a tragic situation at the Easter market will be remembered. Sam Liu died after the sudden onset of epilepsy syndrome, so rare that it affects only one in a million people.

According to LancsLive, the event was hosted by the aunt of Sam Ryanon Jones, the former principal of Kirkham & Wesham Primary School, on Nelson Street, Kirkham, near Preston. The exhibition will take place at the Kirkham Community Center, Mill Street, from 1 pm to 3 pm and will include cake and craft booths, as well as face painting and drawing. Blackpool Victoria Hospital.

Sam died of febrile infection-related epilepsy syndrome (FIRES), which is thought to be an extremely rare reaction to a common virus such as the common cold or influenza. In March of last year, he was hospitalized after suffering a growing series of debilitating and ultimately disastrous attacks.

He had no history of seizures before. Experts from all over the world fought to save Sam’s life, but only seven weeks later he died at the hands of his parents.

Rhiannon and his sister Rachel, who now lives in Derby, have founded a charity for Sam on his behalf that will raise awareness of childhood fires and fund activities based on his love of animals, nature, and crafts and crafts. Outside.

“I remember sitting in my car crying tears of joy when I heard Sam was born and three days later he was enjoying my first cuddle with Sam,” Rhiannon said. “We were so happy to welcome Sam into the family and so proud to have him with us for five very precious years.”

“He was a very special child, full of kindness, love and awe and fascinated by the beauty of the world around him. His loss left a huge hole in our lives, but I know he is very proud of what his mom and his team at Sam’s Superheroes are doing.

“Although Sam lived in the derby, he had happy hours with his family here in Blackpool, and although Sunday’s event is Sam’s superhero event, with many of the superhero activities and crafts he enjoyed, there we realized it was important. All proceeds are donated locally. We hope that many families will come out of Kerkham and Fisham on Sunday.”

To learn more about Sam’s superheroes, visit samssuperheroes.co.uk. Click here to make a donation.

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Source: Belfastlive

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