For me/CFS patients – explaining club beds on Helenplatz

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Austrian society for me/CFS requires more awareness of multi -system disease and better care for patients. Field beds will be set up on Wiener Heldplatz under the motto “Unzilt since 1969”.

These are symbolic of the seriously ill patients. On Monday evening, sights will be illuminated everywhere in Austria Blauw, including the Wiener Ferris Wheel, the Donaukanal Bridge and the Vienna Volksheater, the Graz Clock Tower, the Ars Electronica Center in Linz, Mirabell Castle in Salzburg and the Golden Dachl in Innsbruck.

In 1969, the year in which the World Health Organization (WHO) ME/CFS is officially recognized as a disease referred to the year. ME/CFS means myalgic encephalomyelitis/chronic fatigue syndrome and is mainly activated by infections such as COVID-19. Symptoms are physical weakness, muscle pain, flu symptoms and a deteriorated general condition. Even small daily activities such as brushing your teeth and showers can be experienced as tiring. Before Pandemie, tens of thousands of people in Austria were already hit.

The Austrian society for me/CFS criticized that the affected were nevertheless insufficiently cared for. For example, there are no specialized treatment centers and only “a handful of private doctors who deal with the subject”. Many of them could no longer accept new patients.

PVA rejects 79 percent of the applications
Affected people also have major problems with social care, said Club Vice-member Astrid Hainzl. The pension insurance institution (PVA) rejected 79 percent of the evaluated applications of patients. The appraisers had made partially outdated diagnoses, the original diagnosis of ME/CFS or Post Covid. Those are said that “they are not sick” and that there are too few research results.

“For years we have drawn attention to the serious complaints that have prevailed in the protection of me/cfs. We have transferred reports and matters to politics, have made searches on the legislative amendment and co-formulated measures in the national action plan for PAIS. There are no specific steps,” HainZL has been criticized.

Austrian society for me/CFS calls for, among other things, the national action plan to implement it quickly, to promote research and to set up specific start-ups and treatment centers.

Source: Krone

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