An angry mother criticized doctors for repeatedly losing her young daughter’s brain tumor, even though videos showed Tut was suffering from epileptic fits. Esmay Wright is now struggling 50/50 with his survival after being brought home from the hospital multiple times, despite several seizures.
Mum Chloe Wright, 26, said she got “different diagnoses” every time they went to the emergency room before they were sent on a trip and told she was waiting for a letter of reference. Khloe was convinced her daughter was “in good health” even though she was “empty behind”.
Eventually, he was diagnosed with a rare, violent tumor of ependymoma the size of a grapefruit. Disturbing videos show little Esma’s convulsions, hours after doctors denied her mother’s fears that she was ill.
Chloe photographed her young daughter, who was suffering from a spasm, to show the doctors that the little girl was very ill. The first video was filmed at Stoke Hospital on October 6 last year and shows Esmay seemingly moving in trance with wide eyes.
Mother Chloe holds her daughter by the hand until the cramps go away. Despite showing videos, doctors repeatedly told Khloe that Esmay was “in good health.”
A similar episode was filmed the next day at Esmai’s home, due to an undiagnosed brain tumor. He was eventually diagnosed with a large brain tumor and is currently undergoing debilitating chemotherapy.
Computerized tomography (CT) scans showed Ismay had a grapefruit-sized tumor that had caused his entire brain to swell on his left side. He was undergoing chemotherapy, which caused painful sores and burns in his mouth, which Khloe treated with ice cream on her cheek.
Chloe, from Stoke-on-Trent, said she first realized something was wrong when her young daughter began “space research” in October last year. He was referred to a center by a local doctor and diagnosed in Ismay with seriousness, often known as alibi.
The two were sent home, but later that day Asma suffered convulsions and an ambulance rushed both to Stoke University Hospital. Chloe said, “We went through a cycle of Esmay seizures which I was going to photograph and show to the healthcare team on the way to the hospital.
“Every time we saw the doctor, we had different diagnoses and each time we were told he was healthy and had to wait for a letter of reference. I am obviously very angry because it took so long for my young daughter to be diagnosed. No recurring seizures at his age.
A doctor went to speak to a practitioner, he didn’t even see a name and said they didn’t think it was an epileptic fit. I was really angry.
“They would have taken another route had they taken it earlier. I had to fight because I knew something was wrong.
“I knew my baby was not feeling well and I asked the doctor if he could do something, but he said he didn’t need anything. I was angry and no one listened to me.
“My daughter is undergoing chemotherapy now – once every two weeks – we have good and bad days, but I think this could have been avoided. Doctors said she would need at least a year of chemotherapy and the tumor was life-threatening and a 50 percent survival rate.
Esmai will continue chemotherapy until November, and additional radiotherapy options are available should the tumor grow. Chief Nurse Anne-Marie Riley of the University of North Midlands NHS Hospitals Trust said: “We understand this is a very traumatic experience for any parent when their child is sick and are deeply saddened that Ms Wright had reason to complain about the services she and her son received here at UHNM.
“Our goal is to provide the highest standards of care and we are in contact with Ms. Wright to thoroughly investigate her concerns and resolve any issues.”
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Source: Belfastlive
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